On the sets of KBC, Spinal Muscular Atrophy (SMA) suddenly got the limelight it deserved when Amitabh Bachchan announced that he would like to donate for the Rs 16 crore one-time Zolgensma drug for a child suffering from this fatal rare disease.
The drug, the most expensive in the world, and Spinraza that costs Rs 78 lakh per vial (needed for a lifetime) are administered to children with SMA, at Bangalore Baptist Hospital, which is home to India’s only paediatric neuromuscular centre.